> I was diagnosed as T2, when I was clearly T1. They didn't even do an antibody test, all because I was an adult.
Same. I was about 30, long distance runner and bike rider. Went from 170 pounds to 130 over about 4 months. Doctor shrugged and was like, “You must be addicted to carbs. It’s type 2 here’s metformin. Start eating better.”
I have since found 2 doctors who I like quite a bit. But I now know that I’m the only one on planet Earth who truly cares about my health. It should’ve been obvious from the start, but it wasn’t. Now I know. If I want to be healthy, it’s on me to get there.
> But I now know that I’m the only one on planet Earth who truly cares about my health. It should’ve been obvious from the start, but it wasn’t. Now I know. If I want to be healthy, it’s on me to get there.
This is especially true for T1D. You don't just go to the doctor twice a year and have them prescribe a set medication dosage you take every day. You have to constantly adjust and factor it into every decision, every hour, of every day, for the rest of your life.
The reality is that chronic diseases vary greatly from person to person, and a doctor just doesn't have the time/patience/first-hand experience to treat your disease optimally. That's why their best option in the 20 minutes they have with you is to just prescribe some hard core drug or procedure that is one-size-fits-all for your disease.
I've seen a dozen doctors about my own chronic disease and 90% of them are useless beyond prescribing the standard $30k/yr chemo drug (which I'm allergic to). The only doctor that has ever actually helped me in my recovery was a naturopath. She didn't have the ego of an MD and actually took the time to build and iterate on an individualized treatment plan.
Yes, I 100% agree. Constant decision making and second guessing and third guessing takes a huge toll. I’m definitely not a positive-all-the-time person but I am happy to get to use a Dexcom that gives much more useful information than finger sticks.
Same. I was about 30, long distance runner and bike rider. Went from 170 pounds to 130 over about 4 months. Doctor shrugged and was like, “You must be addicted to carbs. It’s type 2 here’s metformin. Start eating better.”
I have since found 2 doctors who I like quite a bit. But I now know that I’m the only one on planet Earth who truly cares about my health. It should’ve been obvious from the start, but it wasn’t. Now I know. If I want to be healthy, it’s on me to get there.