I struggle with why this access is an issue. If the health data were used in making insurance decisions, marketing, employment, or any sort of way that has a personal impact on the people in the data set then absolutely not. But presumably personally identifying information is in no way relevant to the task of training models, so what specifically is the concern? Medical data is a constellation of observations over time. Why is this particularly sensitive, especially if it’s not associated with any specific identifiable person?
HIPPA has seemed to create a view that anything related to medical care is the most secret information in all the world, when in fact it’s pretty useless to anyone but yourself and people that want your money in some way that exploits your health situation. HIPPA itself only really erects barriers between your health data and disclosure to insurers and providers without your consent.
HIPPA has seemed to create a view that anything related to medical care is the most secret information in all the world, when in fact it’s pretty useless to anyone but yourself and people that want your money in some way that exploits your health situation. HIPPA itself only really erects barriers between your health data and disclosure to insurers and providers without your consent.